By Mary Hiland
In 2012, Mary Hiland, legally blind as a result of retinitis pigmentosa, was forced to move her 96-year-old mother, blind, deaf, and suffering from dementia, to an assisted living facility. At the time, Mary was living in Columbus, Ohio, and her mother was miles away in Indiana.
After describing the circumstances necessitating this difficult decision, Mary explains how she, with the help of her son and daughter, orchestrated the move to a facility in Columbus, where Mary could more easily care for her mother. Although Mary wasn’t her mother’s personal caregiver, she was still responsible for her bank statements and laundry, making doctor and other appointments, and dealing with the facility staff.
She reminisces about her childhood and her relationship with her mother. She describes a trip they took through the British Isles years earlier when her mother was starting to go downhill.
Mary provides insight on what it’s like to be blind, answering many frequently asked questions by sighted people about how blind people do certain things. She tells several humorous anecdotes about mistakes she made as a result of her blindness, like the time she made chili with canned grapefruit instead of beans.
Mary describes the adjustment process her mother went through after leaving Indiana and all her friends and moving to the assisted living center in Ohio, where she lived for two and a half years before she passed. Her mother eventually made friends with other residents at the facility, even though she couldn’t remember their names. Mary describes the group activities in which she and her mother participated. She eventually started an unofficial red hat group there as an attempt to help her mother and other women at the facility become more socially involved.
Mary describes the healing power of music during this time. Her mother played the piano, and after moving to the assisted living facility, she often played for the residents. One gentleman even sang while she accompanied him. In the end, when her mother was in hospice care and could no longer play the piano, a music therapist brought a key board to her room and played and sang her favorite hymns.
Although I cared for my late husband Bill at home for six years before he passed, I could still relate to Mary’s emotions, especially her guilt. Throughout the book, she keeps saying she could have done things differently. Now that I think back on Bill’s life, I feel the same way. However, in the four years since his death, I’ve come to realize that thinking one could have done things differently doesn’t do any good now. I certainly hope Mary has come to realize this, too.
The scenes in the book where music played a role nearly moved me to tears. I was once a registered music therapist, working with nursing home residents. After Bill suffered his strokes, I couldn’t do for him, as a music therapist, what I could have done for other residents like Mary’s mother. I wish a music therapist could have been available to work with Bill on singing in order to improve his speech. During Bill’s last days, instead of me playing the guitar or holding his hand and singing his favorite songs, I wish a music therapist could have played a keyboard and sang songs while I held his hand and sang along.
This book is similar to my own memoir, My Ideal Partner, in which I explain how I met and married and then cared for Bill after he suffered his strokes until he passed away. We’ll all grow old eventually and may need to move to an assisted living facility or depend on someone to care for us in our last years. Therefore, I recommend reading both books for insights on life, aging, and disabilities.