by Juliette Fay
Set in a suburb of Boston, this story centers around a family with Huntington’s Disease, a degenerative disorder that becomes prevalent during adulthood. Shawn, a nurse who has worked in developing countries for years, thinks he has dodged the bullet but refuses to be tested.
Feeling burned out, he comes home, hoping to re-group and then return to his work. Years earlier, after Shawn’s mother died of Huntington’s Disease, his father left Shawn and his brother and sister with their aunt and never returned.
Now, Shawn discovers that his aunt is suffering from some sort of dementia not related to Huntington’s, and his eleven-year-old nephew, Kevin, has sensory processing disorder which effects his behavior. Kevin is the son of Shawn’s brother, who died of pneumonia after Shawn went overseas.
Because his sister, a want-to-be actress, is too busy with her job as a waitress at a diner and play rehearsals, Shawn reluctantly cares for his aunt and nephew until someone else can be hired. He finds employment in a bakery run by an old friend and falls in love with Rebecca, a girl he knew in high school, who now works as a massage therapist. Then, his sister announces she’s soon heading for New York, leaving Shawn in the permanent role of caregiver. By this time, he’s conflicted between his love for Rebecca, Kevin, and his aunt and wanting to flee to Haiti, where a doctor, with whom he once worked, has opened a clinic following an earthquake.
Then, his father shows up unexpected, and after meeting his grandson, proposes a trip to Ireland with him and Shawn, to which Shawn reluctantly agrees, despite anger at his father for leaving the family years earlier. The book ends soon after they return.
I like the way this book explores the question of “to know or not to know” if you’ll be afflicted with a serious condition such as Huntington’s Disease later in life. It also focuses on the conflict between family love and loyalty and wanting to pursue one’s own dreams, especially if one’s life may be cut short by a serious illness. I can appreciate how the relationship between Shawn, raised an Irish Catholic, and God changes. There are some serious life lessons to be learned here, so I definitely recommend this book to everyone.